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Community Information and Services/Disabilities/Children with DisabilitiesCommunity Information and Services/Parenting/Children with Disabilities
Information for parents and specific condition information and National Support groups

Other Locations
Family Assistance Office [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

The Familiy Assistance Office website helps families find information on the internet, specifically information and services provided by the Australian Government. This is one of several Australian Government customer-focused portals providing access to services and information, arranged around a single entry point www.australia.gov.au.

Author

Australian Government - Department of Families, Community Services and Indigenous Affairs, the Australian Taxation Office, Centrelink and Medicare Australia.


Raising Children Network [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

With a consortium of three of Australia's leading early-childhood agencies at its core, the Raising Children website was developed with the help of an extensive network including the Australian Government. Their role is providing information that can help parents with the day-to-day decisions of raising children, and looking after their own needs.

Author

Community Organisation - Raising Children Network (Australia) Limited


Active Inc., Victoria [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

Active Inc. was formed in 1974 as a support group for parents of hyperactive children. Active's role is to promote community awareness and understanding of the needs of children and adults with ADHD and those who care for them. Active Inc. aims to provide companionship for management of attentional disorders.

Author

Community Organisation - The Hyperactive Children's Association of Victoria


Attention Deficit Disorder

Description

Information and resources for parents of children with
attention deficit disorder (ADD) or attention deficit hyperactivity disorder (ADHD).

Author

State Government - Child and Youth Health, South Australia


Australian Association of Special Education [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

"The Australian Association of Special Education Inc. (AASE) is a broad-based non-categorial association concerned with all who have special education needs. AASE aims to advocate on behalf of people with special education needs to ensure provision of and access to quality education services, provide a range of quality services to members and the wider community." Includes links to each State/Territory Chapter.

Author

Community Organisation - Australian Association of Special Education


Australian Spina Bifida & Hydrocephalus Association [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

The Australian Spina Bifida and Hydrocephalus Assocation Inc. is an incorporated body servicing the interests of state bodies in Queensland, Northern Territory, New South Wales, Victoria, Tasmania, South Australia and Western Australia.

Author

Community Organisation - Australian Spina Bifida & Hydrocephalus Association


Autism Asperger ACT [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

Autism Asperger ACT is a non-profit, parent run organisation which relies on the voluntary work of its members (who live in and around Canberra, A.C.T. Australia).

Author

Community Organisation - Autism Asperger ACT


Be My Family, NSW [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

Be My Family is an interagency activity to maximize recruitment of permanent carers for children with special needs in New South Wales, Australia.

Author

Community Organisation - Association Of Childrens Welfare Agencies


Carer Allowance (Child) [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

Carer Allowance (Child) helps parents or carers to care for children with a disability at home. It replaces the former Child Disability Allowance. Carer Allowance (Child) may be paid on top of Carer Payment or other payments, such as Age Pension.

Author

Australian Government - Centrelink


Communities@work, ACT [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

"Our purpose is to offer community services of the highest standard in order to improve the quality of life and well being of our community." Services include child care, various family services and training resources for youth. Centres are based in Tuggeranong and Weston.

Author

Community Organisation - Communities @ Work Inc.


Cri Du Chat Support Group of Australia [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

The Cri du Chat Support Group of Australia Inc. is based in Melbourne but provides support, information and contact to families who have a family member with Cri du Chat syndrome or other abnormality of chromosome five, anywhere in Australia, New Zealand and other countries of the Southern Hemisphere. They also provide information to professionals, students and others with an interest in the syndrome from any part of the world.

Author

Community Organisation - Cri Du Chat Support Group of Australia


Cystic Fibrosis Australia [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

The national organisation assists the member organisations to achieve common objectives by developing national education programs and collecting and distributing information about Cystic Fibrosis (CF) at national and international levels.
This allows member organisations to efficiently and effectively direct their activities to the provision of high quality health and welfare services to children and young adults with CF and their families. A major task of the national office is to secure the funds and professional expertise necessary to conduct research projects throughout Australia into CF, its cause and eventual cure.

Author

Peak Body - Cystic Fibrosis Australia


Darwin Toy Library, Northern Territory [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

The Darwin Toy Library aims to provide services to children who are disadvantaged in the community. This includes those with intellectual, physical, emotional and social disabilities; also those who are economically disadvantaged, children from families for whom English is a second language, and also children who are isolated. Specialised services and adapted materials are available to children with disabilities and special needs.

Author

Community Organisation - Darwin Toy Library


Defence Special Needs Support Group [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

The Defence Special Needs Support Group is a national organisation for defence service families who have a dependent with special needs.

Author

Community Organisation - Defence Special Needs Support Group


Disability News Infoxchange Australia [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

The latest disability news covering a broad range of issues

Author

Community Organisation - InfoXchange


Down Syndrome Associations in Australia [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

Directory of associations by state.

Author

Community Organisation - Down Syndrome Association of NSW Inc.


Duchenne Foundation [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

A national non-profit specifically for Australian families affected
by Duchenne muscular dystrophy.

Author

Community Organisation - Duchenne Foundation


Dyspraxia Support Group [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

We offer support and information for parents and carers of children who suffer from Motor, Verbal and Oral Dyspraxia.

Author

Community Organisation - Dyspraxia Support Group


Early Childhood Intervention Services, Victoria [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

Early Childhood Intervention Services (ECIS) support children with a disability or developmental delay from birth to school entry and their families. ECIS provides special education, therapy, counselling, service planning and coordination, assistance and support to access services such as kindergarten and child care.

Author

State Government - Victorian Office for Children, Department of Human Services


Extended Families Australia, Victoria [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

Extended Families Australia (EFA) is a not-for-profit organisation that provides support, respite, significant social relationships and community participation for children with disabilities and their families. The EFA program operates in metropolitan Melbourne and the Mornington Peninsula.

Author

Community Organisation - Extended Families Australia


Fact information sheets for parents of children with a disability [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

Fact sheets provide an introduction to a few conditions, which may be identified early in a child's development.

Author

State Government - Victorian Department of Human Services

Language

Various


Family Advocacy, NSW [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

Family Advocacy is a New South Wales advocacy group "empowering families in which there is a child or adult with a developmental disability to achieve great things!"

Author

Community Organisation - Institute for Family Advocacy and Leadership Development


Interchange, Victoria [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

Interchange is a community based, not for profit program, providing support to families who have a child or a young person with a disability. Interchange provides respite and social support through a volunteer host carer program and a range of recreational and social activities with the help of volunteers. These include camps, school holiday programs, youth groups, sibling and family activities. Interchange is available to all children and young people with disabilities.

Author

Comunity Organisation - Interchange


Kids Plus Foundation, Victoria [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

Kids Plus Foundation is a not for profit organisation that provides intensive paediatric therapy for children with cerebral palsy, brain injury and stroke.

Author

Community Organisation - Kids Plus Foundation


Learning Links [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

Learning Links is an Australian charity and non-profit organisation assisting children who have difficulty learning.
We work with families to provide a complete service for children in need. Our service brings together teachers, psychologists, speech pathologists, occupational therapists and family counsellors to work towards each individual child's goals. Learning Links helps children to be the best they can be.

Author

Community Organisation - Learning Links


Learning to Learn, Sydney, NSW [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

Learning to Learn is a parent and therapist run organisation which has an interest in Applied Behaviour Analysis in the treatment of children with Autism Spectrum Disorder. It is a non-profit organisation which acts as a discussion forum for both parents and professionals.

Author

Community Organisation - Learning to Learn


Limbkids Support Association Inc

Description

Limbkids Support Association Inc is a non-profit, voluntary organisation comprised of parents, professionals and interested people concerned with the care of children who have congenital or acquired limb differences.

Author

Community Organisation - Limbkids Support Association Inc.


Livewire [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

Livewire is a safe and fun online community for young people (aged over 10 and under 21 years) living with a serious illness, chronic health condition or disability.

Author

Community Organisation - Starlight Children's Foundation


Lord Somers Camp and Power House, Victoria [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

Camp Diversity - Twice-yearly community camps, staffed by Lord Somers Camp volunteers, offering a weekend of games and activities for young people with special needs such as a chronic illness or diability.

Author

Community Organisation - Lord Somers Camp and Power House


Marymead Child and Family Centre [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

"Established in 1967, Marymead is a non-profit community welfare service agency located in Canberra, which provides a range of services to assist families in their role of parenting. These include parent education, family support, parent-child contact, respite, foster, community and residential care, and individual programs for families affected by disability, challenging behaviours and chronic illness."

Author

Community Organisation - Marymead


Melton Combined Youth and Special Needs Club Association, Victoria [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

This Association is a registered non-profit charitable organisation which runs a youth group known as 'The Khaki Rebels'. The group is for children aged between 5 and 18 years who have special needs, ranging from mild to major disabilities, who live in the western suburbs of Melbourne. Siblings and friends of each special needs child are also eligible for membership. All Parents are welcome to join the Association.

Author

Community Organisation - Melton Combined Youth and Special Needs Club Association Inc.


MyTime [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

MyTime groups provide local support for mums, dads, grandparents and anyone caring for a young child under school age with a disability or chronic medical condition. MyTime gives parents the chance to socialise and share ideas with others who understand the rewards and intensity of the caring role. Parents can meet with people in similar circumstances to have fun, hear from others and find out about available community support. Research-based parenting information will also be available at group meetings.

Author

Community Organisation - Parenting Research Centre


Northcott Society, NSW [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

"The Northcott Society provides support and other services to over 2,500 families across NSW. Our aim is to help people with disabilities develop skills, maximise their potential for independence and to participate as full members of the community. Some of the people Northcott support have spina bifida, cerebral palsy, neuro-muscular disorders, limb deficiency, and other lesser-known conditions."

Author

Community Organisation - The Northcott Society


Novita Children's Services, SA [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

Novita Children's Services is the main provider of therapy and family support services to children, aged 0-18 years, with physical or multiple disability living in South Australia.

Author

Community Organisation - Novita Children's Services


Parent Portal

Description

The Parent Portal was designed especially for parents of children with development disability. It features a comprehensive guide to books, videos and websites that relate to a variety of conditions, syndromes, life events and other special topics.

Author

Community Organisation - Activ Foundation Inc.


Parental Stress and Coping with ADHD Children Research Study [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

Studies have demonstrated that parents with children diagnosed with ADHD experience more stress than parents with children without ADHD. This has been found to lead to several problems, including health and financial struggles. This project will investigate the coping techniques used by parents with children who are diagnosed with ADHD, and its effects on their children.

Author

Educational Institution - University of Sydney


Payments while your child is ill, injured or has a disability [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

Payments comprise:
- Carer Allowance - for people who care for a child with a disability at home.
- Disability Support Pension (once your child is 16 years of age) - for people unable to work for 2 years due to illness, injury or disability;
- Assistance for Isolated Children - if your child cannot attend school locally because you live in a remote area or your child has special needs;
- Pension Education Supplement (once your child is 16 years of age) - provides additional help for Disability Support Pension recipients who undertake study.

Author

Australian Government - Centrelink


PLAYWORKS, Resource Unit for Children with Disabilities in Childcare, Victoria [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

The role of PLAYWORKS is to resource and support the development of inclusive child care programs. PLAYWORKS supports the development of the confidence and skills of caregivers to include children with disabilities by providing:
- resources;
- information and library support;
- newsletters and associated materials
training;
- referral to local Children's Services Resource; and
- Development Officers.

Author

PLAYWORKS


Programs for Students with Disabilities in the ACT

Description

Contains information about the various facilities and resources for students with disabilities in the ACT.

Author

State Government - ACT Department of Education, Youth and Family Services


Royal Institute for Deaf and Blind Children [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

The Royal Institute for Deaf and Blind Children is an independent special educator, providing a wide range of educational services to children who have significant hearing and/or vision loss, including children who have additional disabilities. The provision of these services is the Institute's primary purpose. In affiliation with the University of Newcastle, the Institute conducts a centre for research and professional development in the education of children with impaired hearing or vision.

Author

Community Organisation - Royal Institute for Deaf and Blind Children


SAKKS - Supporting Aussie Kids with Kabuki Syndrome [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

This website provides information about Kabuki Syndrome and offers support to the families of children with the condition.

Author

Community Organisation - SAKKS


Selfhelp-chess-international [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

Is a non-commercial initiative for chess players who are in selfhelp-youth-or leisure- groups (people with disabilities or social problems) of all kinds, or in schools, private groups, social  devices or organizations of all kinds and countries, their relatives, friends and employees in social devices of all kinds too. By a common hobby we want to get new friends and get over or prevent a crisis together. By an intellectual  hobby, in a light and friendly atmosphere, admittedly organized  but without stress or additional to club playing we want to play chess together and to exchange experiences about chess and to get friends and e-mail-contacts. So you`ll get to know interesting people and new friends and you`ll have much fun together.


Sibling Project, The [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

Here you will be able to understand more about the concerns of siblings with disabilities, find out about books that have been written by other adult siblings, read what other adult siblings say, join an adult sibling internet discussion group (SibChat).

Author

Women and Children's Hospital, Adelaide


Spastic Centre, NSW

Description

The Spastic Centres provides accommodation services for children and adults with disabilities, respite services for their carers and various other programs.

Author

Community Organisation - The Spastic Centre


Special Education Resource Unit, South Australia [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

The Special Education Resource Unit in South Australia provides resources including curriculum materials and equipment for students with disabilities and their parents. The site explains the conditions for and type of assistance available.

Author

State Government - Department of Education Training and Employment South Australia


The Blueball [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

The Blue Ball campaign was developed as the Duchenne Foundation's primary means of raising much needed funds for research on Duchenne muscular dystrophy. On a national level, the Blue Ball Game will help raise awareness through professional sporting events. At a community level, the Blue Ball Sports Day is designed to energise children, parents and schools through a fun and educational process that everyone can get involved with in their local community.

Author

Community Organisation - Duchenne Foundation


Through the maze

Description

'Through the Maze' is a 30 page resource booklet with information about services for families of children with a disability in all regions of Victoria, Australia. You can view 'Through the Maze' online or view/download a printable version (in pdf format).

Author

Community Organisation - Association for Children with a Disability


Townsend House, South Australia [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

Townsend House has been providing help to Blind/vision impaired and Deaf/hearing impaired children since 1874. They also provide CanDoNet, Australia's first Internet Service Provider whose specific aim is to aid community organisations and people who come from a disadvantaged background or have disabilities. Recently they launched a new co-brand called CanDo4Kids.

Author

Community Organisation - Townsend House


Victorian Association for Children with a Disability [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

The Association for Children with a Disability provides information, advocacy and support to parents of children with disabilities in Victoria.

Author

Community Organisation - Association for Children with a Disability

Language

Arabic, Chinese, Vietnamese


What happens when a Carer Allowance child turns 16? [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

This factsheet provides detailed information about what happens when a carer allowance child turns 16.

Author

Australian Government - Centrelink


Yooralla Society of Victoria [YOU WILL NOW LEAVE THE community.gov.au WEBSITE]

Description

Yooralla is one of Victoria's oldest and largest non-profit community service providers. They assist Victorians who live with a disability acquired from birth, accident, ill health or age. They offer pre-school, school -aged and adult therapy services,
residential accommodation, respite in and out of home, equipment, advocacy, employment and recreation services.

Author

Community Organisation - Yooralla Society of Victoria


See also: | Aids and Equipment | | Carers Resources | | Learning Disabilities | | Payments or Concessions for people with a disability | | Special Education | | Child Health | | Parenting Help | | Parenting Skills |
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